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Saturday, July 13, 2013

When Empty, All Done!

Today we were all on our own with Abby's feeds and the day went pretty good!  Today is our nieces 5th birthday (Happy Birthday Ari!!) so we were out at her birthday party most of the day so I had to prep all Abby's food (and milk) ahead of time.  I'm really hoping that in a week or two making her food and all the measuring I have to do will become much quicker, as today I spent a good hour in the morning making her lunch, measuring out all the additives, packing finger foods, measuring out her milk and packing up toys, etc etc.

Abbys solid feeds are getting so much easier and quicker, it's really amazing for us to see how well Abby has progressed in such a short time!  I think she is beginning to understand the "when empty, all done!" concept!  I've been texting back and forth with Allyne today and she thinks that if Abby keeps doing so well we'll be able to up her solid puree intake to 1 and 3/4s ounce soon!  :) The harder parts of the day are her milk feeds...this little girl just does not want to work with us much on this one! Hopefully as we continue to just keep on with the protocol, Abby will start to cooperate more as she will see that everyday, 3x's a day her milk is going to come, we're not backing down!

Here's a pic of today's happenings....

Abby loved watermelon! My notes of everything Abby ate, grand total of 593 calories today!

So far so good!  Praying Abby continues to progress and that her little tummy starts to stretch to hold more volume.  We've noticed that her tummy protrudes and gets pretty hard even after just 1 ounce of food or milk, so we have to keep an eye on that.  Allyne says we may have to keep her quantity low but give it to her more times a day... we'll see!  

That's all for now! Good night!

2 comments:

  1. Hey Nicole! Your story is EXTREMELY similar to ours. Our Daughter will be 8 months old next week and has been diagnosed with Severe silent reflux. She "sleep feeds" and also associates eating with pain. She has had 2 barium swallows done the last showed aspiration of thin liquids, and significant acid erosion on her esophagas. Every time we see a new doctor or specialist we are constantly "reassured" that things will get better.8 months later we have a child who is only happy when we are NOT trying to feed her. I love your attitude and the way you make it your goal to feed Abby. I also spend my days focusing on getting Adaline to eat all her bottles. Good Job mamma keep up the good work!

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    1. Hi Amber! Sorry for the late reply, we are in the midst of moving so I have not even logged into my blog for weeks! Thank you for sharing your story! Abby is really doing so much better now, I think the key for her was for us to get her medication right (currently on 15mg of prevacid a day) and teaching her that eating isn't going to hurt her. I'm not going to lie, it's still a "chore" to get her to eat, but at least we have ways to get her to finish her portion!! :) Hope Adaline is doing better! It's so heartbreaking to see our little ones in pain and we feel so helpless sometimes!

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