Today has been an emotional day for us. We saw Abby's GI this morning and she gave us the news we've been trying so desperately to avoid: feeding clinic or feeding tube, make a choice!
Abby weighed in at 14 lbs 13 ozs and 26" long. Last month she was 15 lbs even and also at 26". Since Abby has now begun losing weight and her growth is stunted (no growth with her height in 3-4 months), the doctor says we have to take drastic measures before her lack of eating starts to stunt her brain development. She has given us 2 weeks to get therapy started via a feeding clinic or else we will have to hospitalize her for 3+ days with an NG feeding tube. :( Not good news, not good news at all.
I have made several phone calls today. I have emailed and left a message for a feeding clinic, Clinic 4 Kidz.. Still waiting to hear back. In the meantime I will need referrals to begin evaluation/treatment with both clinics, and I will need to assemble proof that this is an urgent medical necessity to submit to our insurance to find out if there is any way we can get some insurance coverage on these clinics, as the clinics themselves do not accept insurance (this is beyond me why they would do this!? Who has $10,000, $20,000 and up laying around!?).
We would like to avoid a feeding tube if at all possible as it is likely to cause more problems than it solves!
This has all been so stressful and emotional for us to go through and we want nothing more than for Abby to be healed and not need such drastic interventions. But we serve a mighty God and we know He is in complete control. Having to go through something like this has number one been very hard as any parent hopes for a healthy child, but it has also made us more aware of what really matters in life and puts things into priority/perspective. All the odds and ends, the things we thought were "important", the drama of strained relationships, the "stress" of work have been slammed to the ground and our focus is on God, and on Abby.
I will keep you posted as we learn more information! Please continue to pray that God would give us wisdom, discernment and peace in selecting the feeding clinic that is best for Abby.
Blessings!
Mama Bear
This blog is for all the moms out there who struggle to get their baby/child to eat. I hope one day this blog will be helpful to someone else who struggles like we do! PLEASE NOTE that Abby has no medical issues (other than reflux and delayed gastric emptying), she is diagnosed with having a feeding disorder. The tips and techniques that work for us may not work for all children (nor is she the same as a picky eater), please seek a professionals help to determine how to treat your child.
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